Title Kvaliteta skrbi palijativnog pacijenta iz perspektive obitelji Title (english) The quality of care of a palliative patient from the perspective of the family Author Jelena Labaš Mentor Marijana Neuberg (mentor)Committee member Hrvoje Hećimović (predsjednik povjerenstva)Committee member Marijana Neuberg (član povjerenstva)Committee member Irena Canjuga (član povjerenstva)Granter University North Defense date and country 2019-09-19, Croatia Scientific / art field, BIOMEDICINE AND HEALTHCARE Abstract Palijativna skrb definirana je kao aktivna i potpuna skrb za pojedinca sa uznapredovanom i neizlječivom bolešću, njegovu obitelj i zajednicu. Naglasak skrbi je na očuvanju kvalitete života, suzbijanju boli i drugih promjena sa kojima se pacijent suočava. Obitelj oboljelog ima ključnu ulogu u brizi za oboljelog člana. Oboljeli koji se nalaze u terminalnoj fazi bolesti žele svoje posljednje dane provesti u poznatoj okolini, svojem domu, zajedno sa svojim voljenima. Nerijetko zbog težine bolesti oboljeli moraju biti smješteni u ustanovu za pružanje palijativne skrbi. Oboljeli tu dobivaju cjelovitu skrb zahvaljujući posebno educiranom multidisciplinarnom timu. Cilj ovog rada i istraživanja bio je ispitati zadovoljstvo kvalitetom pružene palijativne skrbi u Općoj bolnici Varaždin, Službi za produženo liječenje i palijativnu skrb iz perspektive obitelji pacijenata te ispitati postoji li povezanost između informiranosti, spola člana obitelji palijativnog pacijenta, duljine bolesti i zadovoljstva kvalitetom pružene palijativne skrbi. U istraživanju je korišten anketni upitnik „Kvaliteta skrbi palijativnog pacijenta iz perspektive obitelji“, koji je bio u potpunosti anoniman. U istraživanju je sudjelovalo 74 ispitanika. Više od polovice ispitanika (68,9%) bilo je ženskog spola, dok je 31,1% bilo muškog spola. Najmlađi od ispitanika je, u trenutku istraživanja, imao 22 godine, a najstariji 78 godina. Rezultati istraživanja pokazuju da su članovi obitelji palijativnih pacijenata zadovoljni skrbi zdravstvenog osoblja na odjelu. Postoji statistički značajna pozitivna povezanost između informiranosti o bolesti, tijeku i ishodu oboljelog člana obitelji i zadovoljstva skrbi zdravstvenog osoblja na odjelu. Što se ispitanici smatraju bolje informiranima to su zadovoljniji skrbi zdravstvenog osoblja na odjelu. Ne postoji statistički značajna razlika u zadovoljstvu skrbi na odjelu ovisno o tome koliko dugo član obitelji boluje od palijativne bolesti. Postoji statistički značajna razlika u informiranosti o bolesti, tijeku i ishodu oboljelog člana obitelji ovisno o spolu ispitanika. Ženske ispitanice se izjašnjavaju kao bolje informirane od muških ispitanika.
Abstract (english) Palliative care is defined as active and complete care for individuals with advance and incurable disease, his family and community. The emphasis of care is on preserving the quality of life, pain suppressing and other changes that the patient is facing. Patient’s family have a key role in caring for a sick member. Patients who are in terminal phase of disease want to spend their last days in a familiar environment, their home, with their loved ones. Often due to the severity of the illness, patients must be placed in a palliative care facility. Patients in that facility receive comprehensive care thanks to the specially educated multidisciplinary team. The aim of this paper and research was to examine satisfaction with the quality of palliative care provided at the Varaždin General hospital, extension care and palliative care Service from the perspective of the patient's family member, length of illness and satisfaction with the quality of provided palliative care. In this research was used a survey questionnaire „Quality of care for a palliative patient from a family perspective“, which was completely anonymous. 74 respondents participated in the research. More than half of the respondents (68,9%) were female, while 31,1% were male. The youngest respondent, at the time of the research was 22 years old and the oldest was 78 years old. The results of the research show that family members of palliative patients are satisfied with the care of the health care staff at the ward. There is statistically significant positive connection between awareness of the disease, course and outcome of the affected family member and satisfaction with the care of health care staff at the ward. The more well informed the respondents were, the more satisfied they were with the care of health care staff at the ward. There is no statistically significant difference in the satisfaction of ward care depending on how long a family member has been suffering from palliative disease. There is statistically significant difference in information about the disease, course and outcome of the affected family member, depending on the gender of the respondents. Female respondents declare themselves better informed than male respondents.
Keywords
palijativna skrb
kvaliteta skrbi
palijativni pacijent
Keywords (english)
palliative care
quality of care
palliative patient
Language croatian URN:NBN urn:nbn:hr:122:082236 Study programme Title: Nursing Type of resource Text File origin Born digital Access conditions Open access Terms of use Repository University North Digital Repository Created on 2019-10-02 11:55:24
